One month after Mia was brought to the hospital, she surprised us all by indicating that she wanted to try and write something. This is incredible in itself, because only two days earlier I had placed a marker in her hand and asked her to write her name on a dry erase board, and she couldn’t do it.
Mia has developed her own simple gestures to convey her feelings. She moves her right hand, mostly, and rotates it, waves it, and points. She blows kisses, and says yes, no, and ‘Thank You’ in sign language style. But she has, until the 28th, been unable to make anything other than a circle and scribbly lines.
We had no way of knowing whether or not this was the result of an A.B.I. (Anoxic Brain Injury) sustained at some point over the past month, which was extremely likely. We had been warned that if a person goes through 48 minutes of c.p.r., a heart transplant, and with all the clot issues, the possibility of stroke or a.b.i. were very real. Now, MiaBella being the “Miracle Mia” that she is (and we’ve talked about the number of miracles that have occured throughout this whole experience), her blood gas’ or the amount of oxygen that was in her blood throughout the cpr was said to be ‘excellent’, thanks to the incredible staff in the C.I.C.U. and the fact that she was intubated and bagged throughout. Regardless, I have been extremely concerned, if not prepared for the idea that Mia would have some severe deficits (including the inability to write) once things calmed down.
Well, SURPRISE!!! I was at work when Heidi took a picture on her phone and sent it to me……..
Here is one of the first things she wrote:
It was one of the many Incredible moments in this journey and I will never forget it! Over the past two days, we can barely shut her up! 😉
She’s asking all kinds of things!
She knows that she has had a heart transplant. She knows that her lungs are sick, and she remembers most everything we ask her. Her personality comes out. But she’s very tired a lot of the time. When she is ‘awake’ and alert, it lasts for about 15 minutes. She tires quickly.
Her days are full. They start at 4:30 a.m. with her morning chest x-ray. Throughout the day she is moved from side to side and takes turns on her back. This happens every 2 hours, or so? She needs frequent suction (from her lungs/endotracheal tube) as well as her mouth. She has over 8 tubes and/or lines going into her body….. down from over 12 last week! It looks like a freakin’ fisherman’s NIGHTmare in there! Especially when we move her to the P.T. chair!
We’re down to one chest tube, an endotracheal tube, a pic-line, and a couple of i.v.’s.
Now, with regard to this kid’s birthday tomorrow, I asked her what she wanted for a gift, and she wrote that we had been ‘discussing’ negotiating over a new laptop computer for school. Prior to this adventure, I had asked her to write an influential argument as to WHY she deserved a computer? Why she needed one? and what she would do to ‘earn’ and keep it? Rules of use, etc. I was just trying to be a good Dad. No a.b.i. here!! she totally remembered!
So,….. I told her I was going to get her a laptop for her birthday, and I needed to know what color she wanted. Light blue. 🙂 All I wanted was an Eskimo Kiss. Eskimo Kisses