This is Her Story of Peace, Love, and Strength

Archive for the ‘Uncategorized’ Category

Megan Rapinoe takes time to discuss soccer strategy with Mia…..

 

Megan Rapinoe from the USA Womens National Team visits with Mia and Katharina, from Holzkirchen!

On our way to the ReAL Salt Lake Soccer game!! Thanks to our great friend, John Kimball and the ReAL team.  Mia got to meet and talk to Megan today for about an hour before she joins the ReAL organization for festivities around today’s game. She was genuine and sincerely interested in Mia’s condition….. asking several times about how she was doing, and asked about her soccer career.  Of course Mia bragged about the Cheetah’s and the undefeated season, Coached by Dr. Tom Weed, and Brian Barker.  GO CHEETAH’s!!!  Those were the days!

Mia continues to improve and grow stronger! More later! we’re off to the game!!!

GO ReAL!!!!!!

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Another 'Clear' Biopsy! (Deep exhale…….!)

Once a week at first….. then, once every two weeks. And now, after today, it will only be once a month.  That’s the day that Mia returns to the Primary Children’s Medical Center for her Cath Lab Biopsy.

It shouldn’t be a ‘Big Deal’…… but it is.  Not only for Mia, but also for me.  And of course her incredible Mother, who is now her full-time, 24 hour-a-day Nurse.  For Mia, it is the last place she remembers seeing her Mom and Dad on the night of May 28th.  We wheeled her down in the bed, telling her she just needed a little I.V., and that they were going to put her to ‘sleep’ for just a little while and carefully place a little wire into her heart………. to make sure it kept beating the way it should.   Yea.  Right.  She ‘woke up’ over a month and a half later, with the tube still in her throat, unable to talk, to drink, or even move.  And when she finally did have the tube removed, she couldn’t drink water or put liquid or food into her mouth safely for another 3 weeks! And, as an extra bonus, she was told she had undergone a surgery that would forever change her life…….. That her heart had stopped. That she had had her heart removed from her body, and was now living with another person’s heart inside her chest….. and never mind those tubes sticking out of your chest and sides.

So, yes….. the Cath Lab is not her favorite place. The people are nice enough. But, talk about post traumatic stress??  For me, it’s waiting for the call from the transplant team….. which comes about 4:30 pm the same day of the biopsy.  After they sedate and intubate Mia, they make a small incision in her already scarred neck, and run a catheter down her vessel into her heart. They retrieve a tissue sample from her right ventricle of her heart……. or several pieces.  They measure the pressures in her heart, and approximate the pressures in the chambers they can’t truly access….. the left side. Then the biopsy tissue is sent to the pathologist, Dylan Miller, who prepares and reads the slides and calls the hospital back with the news.  Todays news: NO REJECTION!!!! of ANY kind.  NO GIANT CELLS!!! …………………… deeeeeeep exhale. Slowly spreading smile.  Little giggle…….. knowing glance between me and Miss Mia, as she listens to the report over the speaker phone.   Today, we love the transplant team.  And I wonder about what it would be like to be one of the people who calls us, the patients, and has to deliver the news when it’s not so good?  And I have already prepared myself for that day……. at least, I tell myself I have.  And I know I haven’t.

Another deep breath, head bowed, and I say ‘Thanks’.

A New Heart and 2 1/2 months in the I.C.U.: 1.2 Million. Waking up in your own bed………. priceless!

 

THEMBricks on St. John, March 2011. A rare entire THEMBricks photo.

 

ps.  Mia finally has ALL the sutures out from her surgeries! Last night I took out the last chest tube suture, and Mia insisted on letting Dr. (“He has Angels feathers on his fingers, Daddy!”) Kaza take out the remaining chest incision sutures……. She didn’t trust me with those.  Kids? what are you gonna do with ’em? After all, I forget, I’m NOT a REAL Doctor, anyway.  😉  Gotta love ’em.

So that means that Mia can now take showers! Much to Heidi’s delight!

In other “Mia News”, Bob McCarthy and Marsha Merrill, the beautiful people at The Garage, a road-house style bar on Beck Street in N.Salt Lake, and Miss Angela Brown of SLUG Magazine held a silent Art Auction and fundraiser evening last weekend. It was a blast and a great success. The many artists who donated works of art, including my own cousin Joseph Brickey (incredible artist and painter of many LDS Temple’s Murals and other religious oriented art) and gave of themselves to benefit our Mia.  She continues to be one blessed and lucky young lady.

Heidi, Angela, and Marsh at The Garage

 

 

Mia has also begun Strength Training in earnest, three times a week, with our dear friend Paul Holbrook. He’s not in very good shape, and he doesn’t really know what he’s talking about, but the price it ‘right’.  😉  So, we’re working hard and looking forward!

 

Paul Holbrook helps Mia get back her Black Belt Soo Bahk Do strength!

 

Oh, and another piece of great news,……our new and good friend, Miss Kendra Muller, is getting OUT of the N.T.U. and PCMC on Monday!!!!  Yippeeee!!  After 3 months and 2 days, (Kendra came to the I.C.U. one day before Mia) Miss Kendra will be leaving the PCMC and rejoining her family at HOME.  🙂  Having been on the other end, I know her family and parents are happy, and worried all at the same time.  But, thanks to a very kind and generous offer from a friend and patient who has a brand new electric wheelchair that they didn’t use, we are going to deliver this SURPRISE gift to Kendra and her family when she gets home!!  She has a loaner from the hospital,…… but this will be her very own.  And I hope she’s not reading this before Monday??………… if so, Kendra, pretend you never knew. 😉 and you’re Welcome! you deserve it, and so much more. We love you!

Mia and Kendra’s Dad, Black Beard (aka Jamison) Muller on the day Mia was ‘released’, or discharched. 😉

 

 

 

Arts for Heart, A Benefit for MiaBella Brickey

“Arts for Heart”, A Benefit for MiaBella Brickey

Silent ARt Auction at The Garage, a local road-house styled bar and music venue, located at 1199 North Beck Street, S.L.C., UT.,  Saturday August 20th, 2011, from 5-9 p.m.  21+yrs only.  Sorry, kids must stay home for this one. ;-(  But it’s time for the adults to have fun!!

Marsha Merrill, sweetheart (don’t tell her I said that!) and all around good lady, along with Bob McCarthy, partner and fellow entrepeneur and owners of Club Jam, Stone Ground Pizza,  and now The Garage, have joined forces with Miss Angela Brown, Publisher and ‘Queen Bee’ of SLUG Magazine, one of Salt Lake’s oldest independant magazines supporting the local music, culture, and action sports scene, and founder of Craft Lake City (which was held last weekend at the Gallivan Center), to throw a party and benefit for MiaBella.

Marsha contacted me some time ago about doing this, and I expressed to her the fact that I am so grateful for everyone’s support and concern, but I also know that there are so many other children in this world that need our collective love and support? and Marsha  said, “I want to do something to help your Angel. Your ‘World’.  Next year, I’ll do something else. But, right now, I want to help ‘your World’…….. and Mia is your ‘World’.”   So, of course, after I wiped my nose and stopped crying, I said, “Thank you.” And, “Yes”.

Combine this effort with her dear friend, Angela Brown and the folks from Craft Lake City, who just collected $348.00 at last week’s event, and you can see what an amazing, special community we live in?!  We are SO BLESSED!!! SO LUCKY!!! to know all of you.   I have NO idea how many Karmic Points I have spent in the last 3 months?? but I know I need to spend the rest of my life in the service of other’s just to break even!! 😉

Bottom line, people:  I want everyone to know that I can’t thank you enough. There are SO MANY people who have expressed their concern; who have sent cards, letters, emails; who have given Mia stuffed animals, gifts, and well-wishes.  There are people I don’t even know? Whom I’ve never even met! Who have sent gifts, money, and the all-powerful prayers to support and elevate my precious daughter from the brink…….. the edge.  YOU have saved me from despair so many times. YOU have lifted my spirits and reminded me of how much we are loved and of the Beauty and Power in the Human Spirit.  Heidi, Eli, and I have been given a second chance to walk this life with MiaBella…….. as Paul Cardall says,  “for a little longer”.  I hope it’s a LONG ‘little longer’!!  And I think of you all nearly every day. And I am committed to ‘giving back’. To helping other people, other kids, and we know that Mia is NOT the only kid on this planet that needs help. 

If your support helps you to remember that fact, and if your support of Mia helps you to extend yourself, and helps you to understand that it is through the Giving to others, in the SERVICE of others, and that in the extension of one’s ‘self’, that  we strengthen the very FABric of our Humanity, and our collective spirit- this experience we call Life, then I am happy, and grateful for this, and for you.

With profound Gratitude, we give Thanks for our Blessings.  We give Thanks, for you. See you at The Garage, 1199 N. Beck Street. Saturday, Aug. 20. 5-9 pm.  Come join me for a Celebratory beer!……. or juice! 😉

Mia's first post

I’m finally out of the hospital and doing great! Still getting used to all those meds… otherwise happy to be alive and healing. I am so grateful for everybody that has supported me these last two months, and I thank them for being there for me everyday.

Mia gets an Olympic Sized visit!!…..Cheeks and Medals!

Ok, if the size of a baby’s cheeks could win an Olympic medal, then Katie and Billy Demong’s son, Liam, would definitely take Gold!! Just like his Dad!!  Billy Demong is the FIRST U.S. athlete to win Olympic Gold in Nordic skiing!  He won it in Vancouver at the 2010 Olympics. He brought along his Silver medal as well.  Why not? 😉

We met the Demong’s in the I.C.U. back in May.  I kept seeing this pretty, young lady walking through the ICU waiting room, often with the typical “ICU Gaze”…….. one filled with tears and a look of complete sadness.  Then, one day, I saw her walk through with a smile! and I don’t remember who initiated the first conversation?…… it might have happened up on the third floor, by the now extinct coffee cart?….. but we met and shared each other’s stories.  Katie and Billy have this BEAUTIFUL young boy, or Chunk! named Liam.  Somehow, he contracted Botulism, which is found in Utah soil.  Again, with luck, parental and motherly instinct, and the Grace of God, Liam was brought to the PCMC in time to be saved.  Liam and poor Pappa and Mom suffered through a long ICU stay, but he made it! And, we hope, he and proud Momma and Pappa continue to heal and grow strong!  And, like I said, if cuteness and the ‘munchability’ of those super-sized cheeks could win an Olympic Medal, I’d say Mr. Liam is a Sure-Thing for a Gold! Just like his proud Dad!

So, one day, Katie just happened to be hauling around a couple of Olympic medals. No big deal! Just a GOLD medal,…. and a SILVER!…. OLYMPIC MEDAL!……. and, frankly…. I almost pooped my pants when I held them.  THEY’RE HEAVY! man!   And I asked Katie if she wouldn’t mind bringing them and her chubby baby back to show Mia someday….. oh, and she could bring the dude that won the medals, too……. if she really wanted.  😉     So, she said, “Sure”!  Well, Katie must be part elephant……… wait. That didn’t sound right? 😉 What I meant to say was, Katie didn’t forget! Just like Horton, and over a month later she tracked us down in the NTU and came to visit Mia!   And above is the proof!  (Note Mr. E, in the back…… totally engrossed in his ipod that he got for his 9th Birthday on the 2nd of Aug!  Olympic medals?…… hah! I’ve got ANgry Birds to play!!)

So, I wanted to tell everyone a couple of things with this post…….  One: That Olympic athletes are not always egotistical, self-centered, narcicists. They are also often like Billy Demong, and his beautiful wife and super duper cute chunky baby boy Liam!!  Great people who understand what’s important in life.  People.  And Love. And sharing both.  (Just a side note: when I told Billy how cool I thought it was that he won the Gold medal, all he said was, “Yea. It’s pretty cool. In some ways it at least is proof that I didn’t waste the last 16 years of my life! Ha!…… but really, it just means that on that day, I had a really good day. But most of the time, they just hang out in my sock drawer.”  🙂 !  Sorry, Billy. You’ll have to find a new hiding place, now.  And Billy and Katie are such down to earth people.  At least, from what I can tell. So, I wanted to give Billy and Katie a ‘shout out’, or whatever it is cool people do? Because they took the time to show my daughter some love, and put up with me at the same time.  They get free floss for life. Period.)

and Two: Mia is doing so well!!  She was given a Ride Pass ( I call it a Hall Pass) yesterday…….. that’s another cool story! And…..(drum roll, please)….. MIA IS COMING HOME!!!!  She is scheduled to be discharged on next Thursday!!!!!!! FREAKIN, YEA!!~     un-freakin-believable. 🙂  yep.   you heard me.  coming home.  After 11 weeks, she should be home on the 11th, just short of 12 weeks in the hospital!    Oh, man…… weird. But, possibly True.   Mia can barely control the hand-quiver when she thinks about leaving.

Funny story: the other day, her cousins (The ‘Girls’, the Layden girls and their mom and dad, Marsha and Scott) from New York came into town for Hadley’s wedding, and they brought Mia lunch from Hire’s.  Mia was SO looking forward to the Hire’s cheeseburger! We were sitting in the Angel Garden ready to eat when we received a call that we had to hustle back into the hospital to meet with some doctors and pharmacists.  We abruptly left the culinary fast-food-delights and wheeled our way back in, only to find out that the doctors and everyone were NOT there….. and we began waiting.  Mia, sitting in her wheel chair, said in a resigned voice just loud enough to hear, said, “That’s it. I Officially Hate this place.”  !   We died laughing!  Her burger was getting cold, her cousin’s were outside in the garden, and Mia was waiting for doctors.    We left, and went back outside to join the Layden’s and her dead cow delight….. with cheese. The doctors could wait.  😉

Notice, NO 'N.G.' TUBE!!! "Yep! I'm coming Home!" Puffy cheeks and all! (My mean parents are calling me 'Puffer', after the puffer fish in Finding Nemo. NOT COOL! 😉 ps. Prednisone side-effects SUCK! Be glad YOU don't have 'Prednisone Double Chins'! At least it's only temporary!..... at least, it Better be!

 

ox.  more soon!

t of thembricks.

ps…… as an ‘afterward’…..  as we were tucking in for bed later that night I said to Mia, “So? What did you think? Do you want to win yourself an Olympic medal??”, to which she replied, after some sincere consideration and in her sweet breath-halting voice, “Well,…. I don’t see….. why I’d ….. need one?   All they do is …. sit in your Sock drawer.”  😉  Once again…… perspective.  Out of the mouths of babes……. sleep well, everyone.    Mia is coming home ……. soon!!!

 

Mia leaves the 3rd floor on Eli's Birthday!….. Joins Kendra in the NTU!!

Too tired to do much, or to think straight………. but just got home from putting Mia down/to sleep.  She’s in her New Room, in the NTU, right across from Kendra Muller! and in a much smaller room!!

Mia was tired…… but almost lost her mind when she was told that she is going to get a “Pass” to go out of the Hospital for a couple of hours this upcoming weekend!!!  She will likely come home, see Paco, and see her Real Home…….. for the first time since May 28th.

I am sooooo tired! Falling asleep typing! but I wanted to let everyone know that Mia is working HARD! and doing LOTS of Therapy, from Speech, to Occupational, to Physical, to etc, etc….. and trying to get out of there!   She is still (of course…….. get used to it) severely immunosuppressed, and working Hard! …….. so visits are tough.  They must be SHORT! and infrequent……… for now.  So sorry! please understand.  We/she love you all…………. we just want Mia to have the opportunity to love you all for a LONG time, so call and check before coming to visit. It may not be a good time?  Then again? maybe it will??

Lastly, Today was Eli’s Birthday!!!! Elijah Thomas turned 9 years old today!! We had a great family party here at the house at dinner time, and Eli had 2 friends over, including his cousins and Grandparents.

Mr. E, at Golf Camp, with Uncle's Mitch and Mike!! LOVES it!!!

Much love to you all…….. and to our beautiful children.

 

Mia is OUT of the I.C.U.!!!… Busts Out to watch the Sunset!! 7/22/11

Room 10. CICU. Mia's Home since June 5th. Empty!

Mia's last night in Room 10. Filled with all your Love and Well-Wishes. It took the nurses a LONG time to carefully remove them all!

 

 

That’s right! Mia is OUT of the C.I.C.U.!!  ……….. with mixed feelings, on my behalf.

Sorry, I have to tell you….. it is a scary thing to leave the ICU.  In the ICU/CICU, you have a nurse….. who won’t let you out of her sight. You have at least one doctor within 10 feet, at all times.  You have all the equipment you need to ensure the life and safety of your most precious cargo.  You KNOW everyone there after 2 months…… AND….. there is the slushie machine, coffee, cold cereal, and ice cream. Not to mention free and unfettered access to the saltines and club crackers!! What More can a man ask for?? Frankly, I was in I.C.U. Heaven!  Hard to believe, I’m sure. But,….. true, I think.

I had built wonderful relationships with the staff….. from the Tech’s (who are ALL amazing people!), to the Nurses (who I can’t even imagine a world without?!), to the list of amazing doctors…….. The doctors are hard to describe. 😉  There are many of them. Maybe not as many as the number of nurses, but there are many from different departments.  And they all came to help care for, and guide the recovery of our MiaBella.  The Attendings! All of them, each in their own unique way of treating patients and their family members. The Fellow’s…… oh, they are ALWAYS  THERE!!! WE LOVE THEM!! The Residents, and the Students……. They are all so fun and amazing! I loved listening to them. I loved asking them questions, and was sincerely Amazed! at their patience with my incessant picking and neurotic dribbling on.  They answered my questions with sincere respect and honesty.  They allowed much, and helped me to come to grips with what was happening to my one and only daughter.  They were there, no matter what time of night or day, to listen, and to explain.  They were so kind to me and Heidi.  And they did their job. They…… with the tender loving care, watchful eye, and strict adherence to protocol from the mortal Angels we call Nurses and Tech’s (and RT’s, and OT’s, and ST’s!!!) and they helped Mia to get out.  Mia did much.  I think she did what was innate to her character. She fought to survive. She struggled to live and to heal. And she is battling the tug of the emotional anchor. It pulls you down like being caught in a whirlpool going down a drain. At least, that’s how I sometimes feel.  Spun around and around, an out of control type feeling. But!…….. she’s OUT!Mia and Drew, one of the amazing I.C.U. Tech's. Thanks Drew! and everyone else in the ICU! Strange, but we'll really miss you!!

 

 

They sent her to the 3rd floor.  And she is quickly growing used to her new room, and the increased ‘freedom’. She was across the hall from Maya, and around the corner from Abby, the two other young ladies who also had heart transplants recently.  Mia is happy for Maya, and for Abby, who have both been released already.  Maya was sent home last Wednesday! And Abbey (who actually lives in St. George, and so must stay in Salt Lake City for the next 6 weeks or so before she can go all the way back to St. George) was released yesterday or today? I’m not sure?  But what a way to celebrate Pioneer Day? For all of these girls, and their families…… this is truly a new adventure. A NEW Life.  One of possibility, of fear and obstacle and trial. And the knowledge that it will be difficult. But the Hope that it will be Fulfilling, Rewarding, and hopefully even FuN! But, much like the pioneers who left their homes in the East, they knew their new life would not be the same. They knew it would be hard and likely they would go without the conveniences of their previous life.  I don’t know exactly what Mia, or Abby and Maya think? But this is frequently on my mind.

Mia and her new friend, Abby Doman. you can see Abby's incredible blog/site here (done by her incredible Mother, Michelle and her sister Britt: http://abbyninja.blogspot.com/) Go Abby!! Get better! and come visit us at home when Mia gets out!

One thing that I’ve noticed about our Mia….. and it really doesn’t surprise me,….. but she is expressing Gratitude and recognizing the Simple things in life already.  The eternal saying of “Take time to smell the roses” is simply a call to our awareness. That we should savor the small, the sweet, and the simple things in life. The things we often walk right by!  We all get so caught up in the daily routine and the responsibilities of this modern lifestyle.  Yet, when you break it all down,…. if you are stripped of the very simple act of self-determination as you are when confined to a bed, or a wheel-chair,…. and you are fighting every day for air and for life,….. you are given a gift. A blessing in disguise.  And many of us would not recognize it, even then.  But Mia has.  I will try to give you a couple of examples.

These are things that has brought my daughter to tears……. tears of joy and gratitude.  How do I know? I was there for all of them that I describe, and I asked her why she was crying.  For some instances, asking was not necessary.  But, no matter what the situation, it has been humbling, inspirational, and heart wrenching all at the same time to witness…. and I just wanted to share some of these moments with you.

On her third night out of the ICU, I was tucking Mia into bed for sleep after a long day…… and I was telling her about a funny thing she did when she was still intubated in the ICU. A memory she can not share because of the medication.  There is much that happened in the ICU that she can not remember.

She asked me to tell her another story…… and for some reason, I picked the memory of one of the many times that I would place one ear-bud into her left ear, and I would put the other in mine, and I would play many of the same songs over and over, and sing them with/to her. In a way, I was hesitant to tell her about this, because one of the songs I played over and over was One of the songs was Justin Bieber’s “Never Say Never”, and before May 28th, she didn’t really enjoy listening to Bieber’s music.  But I couldn’t help it.  Eli had adopted two different songs as his ‘pre-climbing psych-up’ songs: “Never Say Never”, by Justin Bieber, and Eminem’s “Lose Yourself”.  And if you’ve ever really listened to the words for “Never”, you might see why it spoke to me and I hoped it would speak to Mia.  I played that song in her ear, held her hand, squeezing and rocking to the beat and emphasizing the message:  

“Never say Never…….

I never thought that I could walk through fire
I never thought that I could take the burn
I never had the strength to take it higher
Until I reached the point of no return

And there’s just no turning back
When your heart’s under attack
Gonna give everything I have
‘Cause it’s my destiny

I will never say never
(I will fight)
I will fight till forever
(Make it right)

Whenever you knock me down
I will not stay on the ground
Pick it up, pick it up
Pick it up, pick it up
Up, up, up, up, up and never say never

I admit, I shed a few tears holding my daughter’s hand, praying that she too believed it to be her destiny…… as her heart was truly under attack, to fight, to never give up, and never say never and to give it all she had.

Then, one night I was trying to play music that I KNEW Mia liked, and we found Katy Perry (Thanks Mindy for clueing me in), and I heard her “Firework” song.  Wow! Not only are the words amazing, but boy! can that girl sing?! Nice. And so, here are those lyrics:

Do you ever feel like a plastic bag
Drifting through the wind, wanting to start again?
Do you ever feel, feel so paper thin
Like a house of cards, one blow from caving in?

Do you ever feel already buried deep?
Six feet under screams but no one seems to hear a thing
Do you know that there’s still a chance for you
‘Cause there’s a spark in you?

You just gotta ignite the light and let it shine
Just own the night like the 4th of July

‘Cause baby, you’re a firework
Come on, show ’em what you’re worth
Make ’em go, oh
As you shoot across the sky

Baby, you’re a firework
Come on, let your colors burst
Make ’em go, oh
You’re gonna leave ’em falling down

You don’t have to feel like a waste of space
You’re original, cannot be replaced
If you only knew what the future holds
After a hurricane comes a rainbow

Maybe you’re reason why all the doors are closed
So you could open one that leads you to the perfect road
Like a lightning bolt, your heart will blow
And when it’s time, you’ll know

Boom, boom, boom
Even brighter than the moon, moon, moon
It’s always been inside of you, you, you
And now it’s time to let it through

Etc.

So…… Remember when you were young? and you’d sit around picking through your albums making “Custom Tapes” with all your Favorite, most inspiring songs?? You’d have tapes all with inspirational songs? or tapes for working out? or those dreaded “Love Song” tapes that we ALL made for our girlfriends??!!…… c’mon!! admit it!      well…… I did.  So, I can’t help it. Old habit die slow, painful deaths. If ever.  Anyway,…..

So I played these song with Mia, singing them into her ear, hoping that my desire to see her through combined with the inspired lyrics in these songs, would ‘see her through’ or help her to find the Courage and Strength to Believe in Herself and aid her in the struggle to define her own future and destiny.  I did so with the intensity I’ve become known for,….. for good and bad,…. and when I would get done with a song, I’d have to excuse myself from her room so I could blow my nose and wipe all the tears and snot that would be streaming down my face and inside my mask! Ha!  Those poor nurses have become numb to ‘gross’ things, but my emotional displays were probably a step up,…….. or down. I don’t know?.

So, back to the story……….. I told her of this, and how I would sing into her hear, and how when the song was done I would whisper into her silent ear, hoping she could hear me, hoping she could feel me, and I would tell her, “Don’t you give up! Don’t you dare give up!  We Love you! We’re here!!”…….. and when I told her I had done this she began to cry.  I leaned down and tried to give her a hug, and as we were having a pretty good time talking about snot and my dramatic and possibly poor choice of songs, and Mia was just moments earlier smiling, I thought maybe she was in pain? So I asked her, “What’s the matter, Mia?? Are you in pain?”  And she just slowly shook her head , “No.”

“So, what’s the matter?” And in her quiet, soft little voice, one word per breath…..

“I’m,……. so,……. lucky.”

 

Yes. And so Blessed.  And so am I.  So are we all.

Story Number 2:  Grass

In the wise words of the Italian P.T., “This girl’s got to get OUT of this place! She’s got to get some LIFE in her!!”  so,……. we busted out again!  Mia and I hummed the Mission Impossible tune as we made our way out the south doors! Telescan en-t0w, hoping the monitor wouldn’t flat line again, like it did the night before when we ‘Busted Out’ across the street to watch the sunset! (That’s another story………. but I’ll try to load a photo of that excursion too!)

Immediately after her last PT session in which she actually stood upright for more than 10 seconds with the ‘walker’ (see video on Facebook), we decided to visit the area east of the Maran Eye Center, south of PCMC.  While we were there, I looked over and thought to myself….. “I wonder if she’d like to feel grass between her toes?…. I know I used to LOVe to lay on the grass in the summer and just stare into the sky…..”   So, I asked Mia, “Do you want to feel the grass?”, “Sure.”, “Well, hold on……. I’ve got an even better idea.”…….

So I positioned the chair, made sure I had enough tubing for the oxygen, and I lifted my 12 year old daughter from the wheelchair and placed her on her back in the grass……… and stepped away.  When I stepped back up, she was crying. I asked her how it felt? And she said, “Incredible!”………to be so inspired by the feeling of grass on your skin….. this re-birth that Mia is experiencing is proving to be the Blessing of a Lifetime. One I intend and hope to experience with her, as much as I can.

So we lay there for over 30 minutes, just staring into the blue sky, and Dad eating the soft, sweet, white ends of the grass. (Something I’ve done since a kid…….. may explain some things, who knows?) And Mia just enjoyed the sensation of cool summer grass on her skin.  ……… until, that is, we were BUSTED by our Nurse!! Mary found us when some friends came to say “Hi” and they couldn’t find us in the hospital! ugh!  Dad is going to lose his privileges!!!   (I hope Dr. Everett isn’t reading this?!) But she had her mask on!……….. most of the time!! 🙂  Thanks Jazmin, Jason, Sage, and Ev, for saying hi and laying a little love on Mia as she soaked up the sensation.  Let’s hope it’s not the last time we spend a little time together sitting around on grass.

😉

May you all take a moment to Smell the Roses…… take time to stop.  Just STOP! ……. and look around.  Begin your OWN Awakening. Begin seeing the Divine in your Life. And all around you.  And take time to love……. After all,… isn’t that all we really want?

For MiaBella………. tbrick of themBricks

 

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